The day is getting sooo close I can almost taste it. What a journey it has been and one I would never want to do again. My life has been turned upside down and I’m not sure if I’ll ever be able to fix it or get back to where it was. . . I can only hope.
I have 2 weeks and 2 days left. Yes, I have started counting the days. I mark them off on my calendar. I have a big pink ribbon marked on the 3rd. I can’t wait to put a huge ‘X’ over that date. Looking back, the time has flown. But going through it day by day, it has drug like a slow locomotive train. If that even makes any sense. My nerves have been very calm. I’m not over anxious like I thought I would be. Earlier this month I was so anxious for the end to be near, I was driving myself bonkers. I can’t believe how calm I have gotten. I guess it’s because I have such strong faith. The day will come. I know it will. Lately, I don’t talk about it anymore to my people at work and I no longer stay in my room. I force myself out of there and to do things with my son. Regardless of how wiped out and drained I feel. I don’t want him to feel so overwhelmed and stressed like he did. That scared me way too much.
As I prepare for my time off of work, I was slapped with the horrible reality that, ‘I WON’T be able to take time off.’ WTF!!!! What exactly does this mean? It means, “you can’t take time off.” WHATTTTTTTTT?!?!?!?! 😱 😭 I don’t understand!! Help me understand. Well, it goes like this. You don’t have enough hours from your last leave of absence (broken ankle) for this leave to take place. Not enough time has passed. There has to be 12 months in between and you need 1250 hours. I can’t breathe. Are you kidding me?!? I’m lost. I don’t know what to do. I have been working all through my chemo (and it hasn’t been easy), from the very beginning of my diagnosis and this is what is in store for me? I still don’t understand. I have worked myself to the ground, because I have to. I am soo worn out, my health is on the line. I speak to my store director about this. Me – “There has to be something we can do. As a 25th year veteran of the company, I believe I am a valued employee.” Him – ‘Yes! you are! But some rules I have no control over.” That’s how our contract is and FMLA. I can take a chance with time off, but it won’t be secured time off. In other words, since I can’t do time off through FMLA, I can take time off but my position won’t be secured nor will my rate of pay or my seniority. *deep sigh* 😢 Well, who wants to take that chance? I need my job and of course, insurance, but it’s something he can’t override. Now what? Me – “What can we do? Will you help me figure out something? I can’t continue working like this. I’ll never get better.” Him – “Yes, we’ll figure it out.” This adds to my already high stress level. Other than the obvious, there are other stresses. My bank won’t help to bend my mortgage payments for a few months and other things just haven’t worked out. I swear, when it rains, it pours. I’m at such a loss with life. I don’t know which direction to go. I almost feel like giving up, but I can’t. My inner soul (the fighter in me) won’t let me. I’m so unhappy with how things are going. There has to be a way out of this whole mess of my life.
I leave after my work day is done and head on over to the district office to see what and if there is something we can figure out. I have a hard time believing that I can’t take the needed time off without consequences. I didn’t ask for this. It’s not my fault that breast cancer decided to hit me just a few months after a broken ankle. What about other people who get very ill multiple times a year and need time off? What do they tell them? Too bad?? I refuse to believe that!
As we go over the past year of my life and my accumulated hours, we try to figure it all out. Maybe there is a chance I had enough, it looks that way. I sure hope so. Several calls need to be made out to make sure what the exact rules are for the company. I will find out soon.
I get that phone call. Nope. . . I don’t have enough hours and 12 months has not passed. I’m shit out of luck. What else can I do?
I keep pushing forward and I continue working. I’m sooo drained 😥 my only option is to keep working. I’m so tired of stressing over things. I don’t wanna stress any more. I want things to go back to normal.
Round 10 – Well, I only have 2 more to go. I marked another day off of my calendar. That pink ribbon on the 3rd is getting closer. The fatigue has been hitting me hard and the stress doesn’t help. I am not sleeping at all. I have so much on my mind. The nueropathy in my feet and hands has gotten bad. My feet feel swollen but they’re not. My fingernails have turned an ugly yellowish color and I started getting ridges on them. They have started to pull away from the skin and I’m afraid I’m going to lose them. I keep bandaids on them, especially when I’m at work. On a brighter note, I have fuzzies growing all over my head. you could never tell though cuz they are baby fine. But yes, they are there. The heat has been pure torture for me. The chemo that I’m getting causes your body temperature to rise. The hot flashes feel like I’m in the fires of hell and I get those like 15 times if not more a day. Its a heat that comes from the inside out and just flushes all through me. Its awful. I’ve had a hot flash here n there in the past but nothing like these ones. It’s making me hate summer sooooo bad. The chemo also causes your pain tolerance to be at an all time low. No wonder I have been suffering so much with pain. My eyes don’t get so blurry anymore and my mouth not as dry but I still have those mouth sores and it’s already been a month straight. None of the mouth rinses help anymore. Oh the joys of the side effects.
I’m off to the district office once again. This time, I am given some helpful information. I was given a glimmer of hope. Something called ‘seniority leave.’ As long as I have worked for the company, I have never heard of this. Yes, it is in our contract. I read it word for word. I don’t need FMLA for this. Really? *gasp* I try not to get my hopes up. Every time I do that, they just get crushed. So, even though I got a bit of excitement, I’m gonna take this at face value. But i can’t help but wonder. Why wasn’t I told this before? Do you know how much stress this information would have saved me? Why doesn’t everyone know about this? All I need is to get a doctors note. Well guess what? A doctors note they shall have. I see my oncologist next week. I’m going to ask him to take me out of work. Fingers crossed.
July 21 – Got up feeling fantastic. Since I just had a round of chemo the neuropathy has my toes feeling very tingly. It does help a bit to elevate them. So, I’ve been doing that. This side effect worries me a bit cuz it can turn into irreversible nerve damage. Ouch, I can’t imagine having that in my feet or my hands all the time. My energy level is awesome today and my appetite is great. Ugh, damn you tongue sores!! When will you go away?! And I just wish and wish I could get some restful sleep. Getting closer 😃
22th – had another great day! Again, I just wish I could get some restful sleep. Running on fumes is getting to be very hard. The hot flashes are getting worse especially at night. I run my beanie under cold water and put it back on for some freshness and to cool off. That seems to help some. Energy level is still pretty good. Ran some errands with my son, had lunch and got some ice cream. We got in the pool for a bit, let the floaty take me around. Overall, things with chemo are pretty good. Don’t wanna speak to soon, but I think my tongue sores are trying to go away. They haven’t been so bothersome and they do feel smaller. I hope. I’ve really hated those. They are so painful 😧 The tingling in my toes isn’t bad at all today. I barely have any. I still elevate my feet whenever I can and no tingles in my hands or fingers. Yay!!!
Sunday – 11 more days til the end. I finally started to slowly pull my favorite customers to the side and tell them what’s been going on with me and that they might not see me for a while. The ones that I couldn’t talk with, I just got their number to call them later. Oh goodness! Were they shocked, some sad but very supportive. I also started telling a few coworkers. To this day, still, the only ones who know are the 4 I told at the beginning and the one I told mid way through. How I’ve managed to keep that secret is beyond me. It’s allowed me to keep things as normal as possible but the whole charade has been stressful. I can’t wait for it to be over. It’s awful when you’re asked how you’re doing in the checkout lane and all you do is smile and say, “I’m doing okay.” When really, you’re whole world is turned upside down. I hate how things have been but I’ve managed to keep it together.
I’ve been tempted to spill the beans to everyone (family & friends) on facebook. I HAVE NOT mentioned anything or even hinted about my situation over social media. A huge part of me finally wants to let it all out but that other part of me that still wants peace and privacy keeps me from doing so. A high school friend posted that she was recently diagnosed with breast cancer. Oh how that broke my heart. She has such a huge journey ahead of her. I have so much to share with her but I don’t want to overstep. If she asks, I’ll share. I can’t help but think of all the unpleasantness that’s ahead of her. It saddens me very much. She will be in my prayers til she makes it to the end.
My friend Tammy keeps reminding me to take care of myself. Not just physically but mentally. She’s always telling me not to forget about my mental health. That even though I’ve been a tough girl through all of my chemo, my mental & emotional health could take a beating. Dealing with cancer, work, family and me (physically & emotionally) is A LOT. I told her I was planning on taking myself out of work. She was happy about that. She said I needed that time to heal. I totally agree. Mentally and emotionally I’ve done very well. I haven’t fallen apart. This worries her cuz I haven’t let it out. I haven’t ‘dealt’ with it emotionally. I’ve kept things bottled up inside. I may have a hard time later, like she did. There’s a chance I might get depressed. I listen to everything she tells me, all her advise. She should know, she went through this herself. Physically, everything that I’ve gone through with chemo is spot on to what she went through. So, naturally, its safe for her to say, I might get effected emotionally as well. For me, I just don’t see this happening. I’m too happy of a person to feel depressed. I just don’t get that down. I get sad and yes I get down but never enough to say I feel depressed. But since she put the thought in my mind I can’t help but hope I come out of this journey unscathed. I hope things go back to normal. She says things never go back to normal. It’s a ‘new’ normal we have to get used to. What does that mean? A ‘new’ normal? I don’t want a ‘new’ normal. I want my regular normal. How I was before all of this. The thought stays stuck in my mind.
26th – Today I feel wrecked. I’m just over tired. I have a round of chemo tomorrow and my LAST one next week. Plus, I see the doc tomorrow for my last examination. Oh how the days are starting to drag. I told them at work that my plans are to go out of work on the 31st. I’m taking the ‘seniority’ leave of absence. I’ll need to use all of my vacation hours to hold on to my insurance. Luckily I have 2 months worth. So at least I know I’ll have insurance for the months of
Aug & Sept. Hopefully surgery and radiation will be done in that time frame.
My older brother invited Dominic to go camping. They’ve been planning for a few weeks. They leave tomorrow until Sunday. My son needs this. He needs some breathing room. I think he needs space from me. He sees me struggling on a daily basis and I feel he just needs to get away. this will be good for him. They’re going to Heron Lake. How fun. I just love camping and being outdoors. But this damn chemo and effects from it have kept me from doing just that. But I think I’ll meet them up there on Friday since tomorrow I have chemo. I’ll go on Friday and come back on Saturday. If I feel okay. I want my son to enjoy himself and have the best time. He needs a fishing license and to pack.
July 27th – My son leaves to go camping for the weekend. Gosh I’m gonna miss him. I haven’t been by myself this whole summer. I hope I don’t go out of my mind. I should be okay. “Bye my Lovey, have the best time! I hope to see you tomorrow!!” 😍 😘
Today I see the doctor. Examination day. YAY!!!! Excellent news! The lump is no longer there. This news puts me over the moon. I.am.sooo.excited!!! This has been the journey from hell. Oh how I have hated it with a passion but the chemo has done its job. As horrible as it has all been, the chemo did what it was supposed to do. It killed the lump. I’m so happy I’m almost in disbelief. Since February, all I have gotten is bad news. I’ve been praying for this. I didn’t want to go through this and not come out on the brighter side of things. I didn’t want to do it for nothing. Now, I can actually be thankful for chemo. How odd to really say that. Oh chemo, you have been such a misery but thank you for killing that lump. Thank you for giving me some hope to still live. Thank you for my life. It was worth it. You tried to put fear in me but my God is stronger than you, I chose faith instead.
~~FAITH OVER FEAR~~
I ask the doctor if he will take me out of work. He said that I had done so good, why now? I told him that i was just too worn out. Too drained and I didn’t want to continue putting myself through that misery during surgery and radiation. It was time for me. Time to start healing. To rest and get better so I can be %100 again. At first he told me ‘NO’. lol he was only kidding. But he agreed to take me out. Yay, I got my doctors note. My return date is Nov. 1. That should give me plenty of time. Time enough for surgery, radiation, healing and to get back to ‘me’. I’m so happy 😃
I am off to do my 11th round of Taxol with renewed energy. My ultrasound, mammy and a visit with the surgeon is scheduled for Aug. What a great day it is. After my chemo, I was feeling so good Clara Sue and I decided to go shopping. Hobby Lobby. Oh Jesus. I love Hobby Lobby soooo much, I need to be kept away from there. haha. I need adult supervision in that store. I need to be held by the hand. I’ll buy everything even with money I don’t have. . . . .but we went 😛
It’s been a great day, even though I was by myself for the rest of it. Think I’ll get some things ready. I think I will go camping and meet them up there. It’ll be a boring long drive by myself but maybe it’ll be good for me. I know getting away certainly will be. I get my nephew to house/animal sit.
ONE MORE TO GO!!!!! I can’t wait!!
28th – I get up and get ready to take off to Heron Lake to meet my brother & fam and my son. I feel pretty good. I’m excited. I can’t believe I am at the point where I can truly say, “I have one more round to go!” I didn’t think I would ever get to this point. When I’m done, that’ll be 16 rounds. 16 rounds of poison that got pumped through my body. 16 rounds that killed everything in me including the good stuff. But I’m alive. I’m still here and I hope to be for many more years to come.
My nephew comes to house sit and I’m off to the Lake. Me, myself and I with just my thoughts and good music. I should get there by 4:30. 2 hours in, ‘ I am really enjoying this drive’. It helped to clear my mind. It helped to push out all the stressful and negative stuff that I’ve been going through. I love jamming out in the car to good music. About 20 min to go, Wow, look at that storm up ahead. It looks mad and threatening. I’m gonna drive right into it. It looks so angry and mean. The sun went away and it got so dark. The temperature is really dropping. It was in the high 90’s went I left. Now it’s already in the 70’s, geez, what a difference. I wonder if they’re getting poured on at the lake? Here come the rain drops. Okay, now it’s coming down harder. What the heck, it’s hailing. Now I can’t even see. It’s coming down so fierce with big hail, I’m forced to drive like a turtle. I can barely see the brake lights of the car in front of me. This is creepy. I’ve never been in a rain/hail storm like this. Good thing I am almost there, I know the turn off is coming up. I must not have phone service, my brother is not responding. Or he doesn’t have any. This is horrible. The hail is gonna crack my windows it seems like. The lack of visibility is making is very scary. Oh good, there’s the turn off, almost there. Things look familiar. OH SHIT!!!!!! I turned on the wrong one. Couldn’t see the signs at all. NO NO, I don’t want to go this way! I tried to correct myself and turn around. It was raining so bad that everything was nothing but ugly muck. As I was turning to correct myself my tires caught the edge of the slippery road and I slid off into the mud/muck. I slid right off the road. I can get out, I’ll be okay. *tires spinning and spinning* I AM SOOO STUCK and I’m sliding further in. It’s raining too much. No one is stopping to see if everything is okay. They are just driving by. I call my brother. No service. What do I do?? My tires kept spinning and because of that I managed to turn my whole vehicle around, I did a 180. From one direction to the other. It’s no use, I’m not gonna get out of here. I started having a panic attack. Here I am, a cancer/chemo patient, in the middle of no where, stuck in the mud on the side of the road (vehicle facing the opposite direction) in the pouring rain by myself with no phone service 😭😭😭 For almost 1/2 an hour I tried to get myself out (only making it worse). I should already be there. They’re gonna start to worry. I started breathing so heavy from the panic I’m surprised I didn’t pass out. I couldn’t even get out of my car the mud was that deep. I sent a text to my brother, maybe he’ll at least get that. “I’m stuck bad, come get me”. It was no use. I put the car in park and just sat there. One by one the cars drove by. I tried not to think bad thoughts but my mind is an asshole. What if someone stops and they turn out to be a creeper? Oh Lord, please help me! The cars are going East & West, I’m facing South. No one bothered with me. This is just like how my life has been going. Of course I would get stuck. Nothing outside of chemo has been turning out right. FINALLY a couple stopped, rolled down their window and asked if I was okay. I was okay, over stressed and panicked but very stuck. The man got out, tried to help but I was going to need a tow strap or a chain to get pulled out. My AWD had failed me. I was sooo stuck. When another couple passed in a heavy duty truck and saw the man trying to help, they too stopped. Luckily, he had a tow strap and by this time the rain had stopped. My brother responded, he got my text. He’ll be right there. I told him some people were trying to help. The man couldn’t get under my vehicle with the way it was positioned and he was too burely to do so. His wife was small enough. She pulled out her rain boots from the truck, put them on, got in the mud and under my vehicle and hooked me up. Another person stopped and asked if we needed more help. They got in their truck and pulled me out ‘just like that’. The other couple hung around to make sure that I was okay. I was out. What a relief. The wife got so dirty and messy but she helped anyway. Thank you Lord for sending such kind people. Yes, there are still lots of good ones out there. I am so grateful. What an ordeal. My brother showed up just as they were leaving. We turned around and went back to the camping site. They hadn’t had a drop of rain. Funny how that works. It could be pouring cats n dogs and just a mile or so away, it’s dry as hell. Yup, that sounds just like my life. Exactly!! We got to the campsite. Nope, no rain but it looks like it’s coming. I had gotten so stressed and panicked that I couldn’t enjoy the rest of the day. It was passed 5:30, I should’ve been here over an hour ago. My son got so worried about me. I did my best to enjoy. The ordeal left me wiped out. I was sooo drained. Why can’t things go right for once??? The outdoors, the smell of rain and the fresh mountain air slowly started to ease my troubled mind but it took forever. That panic attack I had seemed to settle in my bones. *sigh* All I want is to have a good time. It wasn’t supposed to start off like this 😔 My life’s situation makes it so easy to get stressed and stressed I felt. I didn’t have the energy for that kind of episode. Time for a walk. I need to breathe. Here comes the rain. I feel worn out. Enjoy yourself Lovey, don’t worry about me. As long as YOU have a good time.
Earlier in the day he had caught 2 fish. But one got away and the other was too small so he let him go. He came out empty handed. He was bummed out. Better luck tomorrow.
29th – Couldn’t sleep worth a darn and it rained good through the night. The stress from the day before left my body achy and hurting. I didn’t feel good. Oh well, time for breakfast over the campfire and let’s go fishing. Dominic wants to fish out of the Chama river. Let’s go!!
Coopers Ranch – What a great sight. It’s beautiful here and it smells wonderful! I love the smell of mountain air. The sound of the running water from the river is amazing, its so soothing. I soak it all in. It makes my soul feel great and the sun is shining. This is just what I needed. My brother drove and we all piled in the truck. So I didn’t need to worry about any mishaps. On the way here we passed where I got stuck, geez, what a mess it left. A road sign is knocked down. Did I hit that trying to get out?? I don’t remember doing that. Thinking about yesterday made the stress come back. I need to focus on the surroundings. *sucks in breath* look at the elk. I love wildlife. I love the outdoors.
Back at the river – We find a great spot. Man there are lots of people here. Dominic and my niece get their lines ready and throw them in. Good luck, I hope you catch something. Look at the fish jumping up! It’s like they’re saying, “na-na na-na boo boo, haha, just try and catch me!”
He got a couple of bites, but no luck 😦 He was very disappointed. After a few hours he got tired of not catching anything so we decided to go for a walk. It was Dominic, my niece and myself along with my nieces’ pup. We crossed the Swaying metal bridge suspended over the river. They went first. I was holding the dog so his paws wouldn’t get stuck and I started to cross. Holding the dog, I went while they waited for me on the other side. Oh my goodness!!! The rapid flow of the river and the swaying of the bridge threw my head in a tailspin. I got soooo dizzy, I thought I was going to pass out and fall right over. I couldn’t get my bearings. I thought it was all over. I was thinking, “I’m going to fall in the river and get swept away”. That has never happened before. It was like motion sickness. It must be all the medication I’m on. I’m gonna die trying to get across. I had gotten half way and almost couldn’t go anymore. It felt like I had made a bad decision. I can’t believe the way it made me feel, like severe vertigo. It just wouldn’t stop spinning. After what seemed like forever, I got across. That was horrible. It made me feel scared. I hate all these changes. I always enjoy stuff like this. Grateful that the dog and I made it across, I had to sit down and let my spinning mind come to a stop. Believe it or not, I was afraid to go back. We climbed up a rock that seemed to take all my energy and just sat there. What a nice view. Why can’t I just be able to enjoy things without something to blow out the happiness? After some time up there we climbed back down. Geez, that was hard for me. Now to go back across. I don’t know if I’ll make it. This time, Olivia carried the pup and I was able to hold on to the sides with both hands. Here comes the spinning again. Oh I hate this. I made it but again it felt like I was gonna fall right over. This was a bad idea. I’m worn out and ready to go back to the campsite. After my brother had caught some more fish we packed it up and left for a drive. We went to El Vado Lake just for some sights. Here come the mean clouds. Looks like the rain is on its way. Yup, we drove right into the downpour. It was just like yesterday but without the hail. We got to El Vado and just drove around. After a bit we found such a nice quiet fishing spot down below to maybe check out next time. It was a bit of a walk down the mountain but it looked perfect. Everyone started walking down. I started but only went half way for fear I wasn’t gonna have the energy to walk back up. How depressing. It’s depressing when you can’t do the things you’ve always enjoyed. When you can’t take a walk or hike or climb up a mountain cuz you might not have the energy to make it back. I started breathing heavy. As much as I wanted to, I just couldn’t. I watched from above. I watched as my son skipped rocks on the lake. This is heartbreaking. I want to be involved. I want to be normal again. I’m missing out and it’s making me sad 😢 No matter how hard I try, I just don’t have the energy. I took pictures from afar.
Walking back up left me spent. I had the shakes and needed to sit down. My brother gave me a stick to use for support as I walked back up. My situation has me miserable. Next summer I wanna do this all again as a happy, healthy human being. Where I’m able to have fun and enjoy it and not worry about passing out or not having energy or whatever. This journey has been the bane of my life. It has robbed me of so much happiness. I’ll say it again, “I can’t wait til it’s all over!!!” 5 more days. I know the chemo is saving me but I can’t wait for it to be over.
Back at campsite – I know my visit was short but I need to leave. I have work early tomorrow. And I need to rest. This took it out of me. I was planning on leaving and we got hit with a downpour that lasted for a couple of hours. As I got ready to take off, Dominic decided he was gonna come back home with me. He got so worried with me getting stuck yesterday, he didn’t want me driving back home alone. So, he packed his things and came back with me. I felt like I had ruined his trip. But we came home. The 3 hour drive didn’t help but, oh well. Got home beyond exhausted and I paid for it the rest of the day. Thought I was gonna sleep like a champ from it all, nope. . . . couldn’t sleep a wink. Dominic didn’t say anything and honestly, I think he was happy that he came back with me.
Sunday – July 30th – Oh man!! I got up feeling horrible. I can’t move. I hurt sooo bad but I have to go to work. A few more days. The day was rough for me. Talked to a few other customers and told them I’ll be going out of work. I went home miserable. A few more days and I’ll be all done. A few more days and I’ll be out of work. I am almost there. I know I can make this to the end. Can’t quit now, I’ve come way too far. Thursday, I can’t wait for you to come. When I am all done, I’ll be a week and a half shy of 5 months of chemo. 5 months of pure hell and misery and torture I have never known. I’m just a few days away of having my life back. I’ve missed my life how it used to be. I want to do so many things when this is all over. I pray for Thursday to come quickly. I pray for things to go smooth and I pray to feel better. I sure hope my mental and emotional health don’t suffer. Why is that thought so stuck in my mind? I have a feeling I’m gonna fall apart, have a breakdown. I haven’t really cried while I’ve been going through all of this. I haven’t let it out. When I ring that bell I think I’m just gonna crumble. I need that release. I need to cry a million rivers of tears. What a relief that’s gonna be. My chest is just gonna cave in. I know it is but that’s okay. I’ve been a strong woman through this all. I’ve kept myself going and working with sheer determination. By the end of the week my chemo journey will be all over. Next week at this time I’ll be free from the horrors.
July 31 – Well today was supposed to be my last day of work. But once again I was slapped in the face with the fact that I am short on my hours to keep my insurance while I’m out of work. Eff me!! Is it ever gonna stop? I feel like I just keep going in circles. Like if someone is working against me. I don’t need much so I guess I’ll work til the end of the week.
As strange as it is I feel pretty good today and still as calm as ever. All my pains from the weekend camping trip are gone. Yay!!! I turned in all my paperwork for my time off. I just need to gather some more hours.
Tuesday – 2 more days!! I feel pretty amazing. I’m almost in disbelief that the end of this journey is near. Is it really happening?
Something keeps nagging at me. I hope I don’t come out of this too damaged or too emotionally scarred. I share my concerns with others. Why is that starting to bother me so much? I hope I’m still the same person I was before. Whatever this ‘new’ normal is supposed to be, I hope it makes me happy. I guess we shall see.
I wrote out what I want to say to everyone on facebook but I just haven’t posted it yet. I really put time and effort into to what and how I wanted to say it. Gosh, I’m gonna shock them all. I hope they understand. Family on my Moms’ side don’t even know. Even though I’ve told a few more people, my circle is still very small. I think I’ll post it tomorrow. The day before my last treatment.
Well, you could never tell but the fuzzies on my head are really growing. I still look bald but close up you can kinda see. I can’t wait for real hair to grow in so I can get rid of this dreadful wig. I’m starting to hate it. I think I might like having short hair. Who knows. I wonder if it’ll grow out straight or come out curly like I’ve had? I’ve been told it could grow out way different from how it used to be. hmmmmm. My tongue sores have not gone away. geez, that’s going on like 7 weeks now. Soon, my mouth won’t feel yucky anymore. I’ll be able to taste all of my food and it won’t be dry. My eyes will be normal. All of those medications will stop, including the steroids. Maybe I can actually start getting some sleep. I’m looking forward to sooo many things.
The pic below has been a hard one for me to share. It’s a few weeks old but I’m gonna put it on here. It’s the reality of my life. How things have come to be. I know it won’t last forever. I just need to give it time and be patient.
My Reggie!! He always lays with me to make sure I’m okay. I think he can feel my distress, as of late.
Wednesday – One more day!! One more day!! Ahhhh, Is the day really tomorrow? Strangely, I’m still finding it hard to believe. Why is that? Did I really make it this far? I’ve waited for sooo long it seems for this day to get here. I’m excited and still very calm. I took this picture of the bell last week. Soon, I’ll be ringing it. I’ve asked for all of my ‘crusaders’ to be there. No ifs, ands or butts. It’s important for me. We are all gonna ring that bell together. For they have all been with me. I CAN’T WAIT!!!!! 🙂
With a little bit of hesitation, I posted my news on facebook for the rest of my family and friends. No, it didn’t go out to the world. It went to ‘MY’ people only. I have been carefully writing that out like if it was a school paper. A rough and a final draft. I selected careful wording. I didn’t want it to be so rough of a blow. I can only imagine when they read it. I have tried so hard to keep my life normal. Like my Auntie said, “sheer determination”. With no one knowing. Cuz I didn’t want to talk about it all the time. I didn’t want that to be the topic of conversations. I’m ready now. It’s time to tell them. I cried as I put it on there. It’s posted. Here we go. Please don’t be upset cuz I didn’t tell you sooner. I hope you understand. I’m fiercely private. I love you all ❣ ❣ ❣
Is it true? ? Do I really get to ring that bell tomorrow?!. . . . . . 😃 😃 😃